Recognise your situation

PTSD: effective treatment exists, but does not reach everyone

In a Dutch population study, 29.7 percent of participants with probable lifetime PTSD reported a first-choice trauma-focused treatment. Complex PTSD is a separate ICD-11 classification; DSM-5 does not use a separate category with that name.

๐Ÿ•’ Reading time about 8 minutesSubject: PTSD / complex PTSD

PTSD, post-traumatic stress disorder, can develop after experiencing or witnessing a traumatic event. Characteristic are re-experiencing, avoidance of memories of the trauma, negative thoughts or mood, and an increased state of alertness.

Complex PTSD (CPTSD) usually develops after long-term trauma, often in childhood, and in addition has problems with emotion regulation, a negative self-image and difficulty with relationships. In the ICD-11, the international classification, CPTSD has been a separate diagnosis since 2022. In the Dutch system (DSM-5) this separate category does not exist, which makes recognition difficult.

This page does not provide medical advice. We show which pattern repeats itself: a condition with proven effective treatments, which are nevertheless never fully implemented in a large proportion of people. For diagnosis and treatment, go to your GP or the GGZ.

How it matters

What this does to your life

PTSD symptoms may affect sleep, concentration, relationships, work and a person's sense of safety. Avoidance may also become visible in everyday activities: no longer travelling, cancelling appointments or avoiding particular places and traffic situations. With complex PTSD, difficulties with emotion regulation, self-perception and relationships may add another layer. The course of symptoms and recovery varies from person to person.

Read how PTSD may affect daily life โ†’

Imported

The gap between existing and getting

There is no shortage of proven treatments for PTSD: EMDR and trauma-oriented cognitive behavioral therapy have been the first choice for years, and the guideline has recently been expanded to include even more options.

Access remains an important question. In the Dutch study, 29.7 percent of 187 participants who screened as having probable lifetime PTSD reported EMDR, exposure or trauma-focused cognitive behavioural therapy. This was not a registry count of all Dutch people with a clinician-confirmed diagnosis.

Diagram: only 29.7% of people with PTSD in the Netherlands ever received guideline-compliant treatment
Treatment in brief

What you can expect from treatment

A more detailed overview of the complete treatment route can be found on the treatment page.

Trauma-oriented psychotherapy as the first choice

EMDR or trauma-oriented cognitive behavioral therapy, directly aimed at processing the traumatic memory.

A broader palette than before

In addition to EMDR and CBT Cognitive Processing Therapy, Imaginary Rescripting, BEPP, NET and writing therapy have now also been recognised.

Do not necessarily stabilize first

A long stabilisation phase is not automatically necessary for everyone. The treatment route should be chosen individually, taking account of safety, preferences, capacity and co-existing problems.

Recognition in brief

What you can look out for

A complete overview of recognition points is on the recognition page.

Reexperiencing and avoidance

Unwanted, recurring memories, and avoiding places, people or conversations that are reminiscent of the trauma.

Increased alertness

Start reactions, irritability and difficulty relaxing, even in safe situations.

In complex PTSD: more than that

Problems with regulating emotions, a persistent negative self-image and difficulty relating to others trust.

Why Zorgfuik collects this

One story about a missed PTSD diagnosis is a personal tragedy. Thousands of stories together show that the gap is not in the lack of proven treatments, but in the road to it: insufficient questioning, confusion with other diagnoses, and a classification system that does not yet separately recognise complex PTSD.

We do not ask for your medical file. We ask for your experience: which diagnosis you first received, and how long it took before trauma became a topic of discussion.

โ€œA research percentage raises a follow-up question: what help did someone receive, when, and did it fit their situation?โ€

Frequently asked questions

What is the difference between PTSD and complex PTSD?
PTSD occurs after a traumatic event and is characterized by re-experiencing, avoidance, negative thoughts or mood and increased alertness. Complex PTSD (CPTSD) usually arises from long-term trauma, often in childhood, and also includes problems with emotion regulation, self-image and relationships. CPTSD is a separate diagnosis in ICD-11, but not in the Dutch DSM-5 system.
How many people have PTSD in the Netherlands?
A Dutch population study estimated current prevalence at 1.3% for DSM-5 PTSD and 1.6% for ICD-11 complex PTSD; 11.1% screened as having probable lifetime PTSD.
Why is complex PTSD often missed?
Because the Dutch classification system does not have a separate diagnosis of complex PTSD, broader terms are often used. The symptoms also resemble those of an anxiety disorder or borderline personality disorder, especially in women, which leads to confusion.
Which treatments work for PTSD?
Trauma-oriented psychotherapy is the core: EMDR, imaginary exposure or trauma-oriented cognitive behavioral therapy. The recent guideline added cognitive processing therapy, imaginary rescripting, brief eclectic psychotherapy, narrative exposure therapy and writing therapy.
Do you first have to stabilize before working on the trauma?
Not automatically. Guidelines support trauma-focused treatment for complex PTSD, while the route is chosen individually. Safety, preferences, capacity and co-existing problems may be reasons to include preparation or additional support.
What Zorgfuik does and does not do?
Zorgfuik does not provide medical advice and is not a practitioner or crisis service. We collect experiences to reveal patterns, such as the gap between existing treatments and who actually receives them. For diagnosis and treatment, go to your GP or the GGZ.
Intersection

When chronic pain and PTSD reinforce each other

PTSD does not only occur after an accident, violence or disaster. Research among people referred for pain rehabilitation also found PTSD in 9.5 to 34.7 percent of them. Persistent, unexplained pain such as ACNES can itself become a form of trauma: a body that you no longer trust, a system that you did not believe in for years. Conversely, PTSD can actually increase the body's sensitivity to pain, through the same process of central sensitization described on the ACNES page.

This means that startle reactions to pain, or panic to a recurring twinge, are not an exaggerated reaction. It is a well-known, described pattern in which the body and nervous system remain on alert. If this is recognizable, that is a reason to discuss it with both a pain practitioner and a trauma practitioner, not with one of the two alone.

๐ŸŽ Need immediate help?

In case of immediate danger to yourself or someone else: call 112. Are you in distress or are you thinking about suicide? You can call or chat with 113 Suicide Prevention day and night via 0800-0113. Zorgfuik is not a crisis service and cannot solve acute requests for help, but we think it is important that you know where you can go.

Sources

Reliable explanation and help

  • Thuisarts: PTSS - explanation about signs, help and treatment for post-traumatic stress disorder.
  • GGZ Standaarden - care standards and guidelines for Dutch mental healthcare.
Map your situation

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